Cicely Saunders Foundation (2011) 'About palliative care.' Available at www.
cicelysaundersfoundation.org/about-palliative-care, accessed 21 May 2013.
Cicirelli, V. (2001) 'Personal meanings of death in older adults and young adults
Author: Claire Henry
Publisher: Jessica Kingsley Publishers
Category: Social Science
As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.
Palliative Care for Patient and Families Joyce V Zerwekh ... 402404 Tolerance (
drug tolerance), 354b Total sedation, 415416 Transcendence, need for, at end of life, 228—230 Transdisciplinary hospice care team, 66—67 Transition process, ...
Author: Joyce V Zerwekh
Publisher: F.A. Davis
Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
78. 79. Field MJ, Cassel CK, eds., for the Committee on Care at the End of Life,
Institute of Medicine. Approaching death: improving care at the end of life.
Washington, D.C.: National Academy Press; 1997. McPhee SJ, Rabow MW,
Author: Henry S. Perkins
Psychological, social, and spiritual care is as important as physical care at the end of life. Yet caregivers often feel ill-equipped to give that nonphysical care. This book shows how to do it. The book addresses all caregivers who attend dying patients: doctors, nurses, chaplains, clergy in the pastorate, social workers, clinical psychologists, family caregivers, and others. It covers such topics as the functional and emotional trajectories of dying; the varied approaches of patients and caregivers to end-of-life decisions; culturally based beliefs about dying; the differences between depression and grief; and people’s views about the right time to die, the death experience itself, and the afterlife. For each topic the book introduces core concepts and summarizes recent research about them. The book presents much of its material in readable tables for easy reference; applies the material to real-life cases; lists the main “take home” points for each chapter; and gives references for additional reading. The book helps caregivers anticipate the reactions of patients and survivors to end-of-life traumas and suggests how caregivers can respond insightfully and compassionately. At the same time the book challenges caregivers to think through their own views about death and dying. This book, therefore, is a must-read for all caregivers―professional and nonprofessional alike―who strive to give their patients comprehensive, high-quality end-of-life care.
It has collected the opinions of many cutting-edge researchers. Those who design and conduct economic evaluations or economics-related research in end of life populations will find this book thought provoking, instructive and informative.
Author: Jeff Round
Category: Business & Economics
This work carefully guides the reader through the methodological, policy and ethical challenges facing health economists conducting research in palliative care. It has collected the opinions of many cutting-edge researchers. Those who design and conduct economic evaluations or economics-related research in end of life populations will find this book thought provoking, instructive and informative. The provision of care to individuals with disorders associated with advancing age, such as cancer and dementia, is an increasing concern amongst policy makers and providers of health and social care. Accordingly, the burden on state and private funders in providing care to patients with these complex illnesses is of growing importance to health economists. However, answering the questions raised by the research community on end of life and palliative care health economics has received little attention. The authors shed light on many questions including: Are economic evaluation methods fit for purpose in patients at the end of life? What is the best way to measure and value health outcomes in this population? What are the appropriate societal rules to govern resource allocation for people at the end of life? Are these people more or less deserving of resources than other patients? Does age matter? How can we define a good death for the purposes of resource allocation decision making? What ethics govern research in end of life patients?
This book examines the services that chaplains provide to dying patients and the unique relationship that palliative care staff construct with people at the end of life.
Author: Steve Nolan
Publisher: Jessica Kingsley Publishers
Category: Body, Mind & Spirit
This book examines the services that chaplains provide to dying patients and the unique relationship that palliative care staff construct with people at the end of life. It explores the nature of hope when faced with the inevitable and develops a theory of spiritual care rooted in relationship that has implications for all healthcare professionals.
Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Author: Roi Livne
Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
This book sets out an understanding of this complex domain, describing how spirituality is experienced and expressed, and looks at the impact of terminal illness.
Author: Cobb, Mark
Publisher: McGraw-Hill Education (UK)
Holistic models of cancer and palliative care frequently refer to spirituality as an important element. But what do we mean when we talk about spirituality and how do we provide spiritual care? This book sets out an understanding of this complex domain, describing how spirituality is experienced and expressed, and looks at the impact of terminal illness. The author argues that if we are to recognize spirituality as a significant aspect of living and dying then care providers must develop an interesting, consistent and effective approach. Therefore issues of training, policy and practice all need to be addressed. Spirituality is often represented as the fourth pillar of palliative care, and yet it is often the least developed area in terms of both theory and practice. Originating from the author's clinical and teaching experience, this book aims to explore the concepts, issues and practical implications of spirituality in care.
Outlining eight major issues regarding end-of-life care as seen through the lens of the Catholic medical ethics tradition, this work looks at the distinction between ordinary and extraordinary means; the difference between killing and ...
Author: David F. Kelly
Publisher: Georgetown University Press
For over thirty years, David F. Kelly has worked with medical practitioners, students, families, and the sick and dying to confront the difficult and often painful issues that concern medical treatment at the end of life. In this short and practical book, Kelly shares his vast experience, providing a rich resource for thinking about life's most painful decisions. Kelly outlines eight major issues regarding end-of-life care as seen through the lens of the Catholic medical ethics tradition. He looks at the distinction between ordinary and extraordinary means; the difference between killing and allowing to die; criteria of patient competence; what to do in the case of incompetent patients; the meaning and use of advance directives; the morality of hydration and nutrition; physician-assisted suicide and euthanasia; and medical futility. Kelly's analysis is sprinkled with significant legal decisions and, throughout, elaborations on how the Catholic medical ethics tradition—as well as teachings of bishops and popes—understands each issue. He provides a helpful glossary to supplement his introduction to the terminology used by philosophical health care ethics. Included in Kelly's discussion is his lucid description of why the Catholic tradition supports the discontinuation of medical care in the Terry Schiavo case. He also explores John Paul II's controversial papal allocution concerning hydration and nutrition for unconscious patients, arguing that the Catholic tradition does not require feeding the permanently unconscious. Medical Care at the End of Life addresses the major issues that inform this last stage of caregiving. It offers a critical guide to understanding the medical ethics and relevant legal cases needed for clear thinking when individuals are faced with those crucial decisions.
Full of professional advice and career guidance, this book will be an invaluable tool for those working with patients nearing the end of life and those considering working in this area, as well as students in training.
Author: Nigel Hartley
Publisher: Jessica Kingsley Publishers
The many unfounded myths and fears that surround working with people at the end of their lives are dispelled in this thoughtful book, and the authors provide both practical and emotional support for those involved in caring for dying patients. The book covers everything from the philosophy behind the practice to the diverse roles in the multi-disciplinary team, as well as current challenges and opportunities facing end of life care, with an emphasis on how therapy and arts therapies can be integrated effectively. It also looks at palliative care models that address all aspects of a patient's wellbeing and conveys the latest research and challenges in the field, bridging the gap between theory and the realities of working with patients on a daily basis. Using material from artists and therapists working in the field, the varying demands of inpatient, outpatient and home care are described, as well as the processes of bereavement, how to handle the practicalities of loss and the help that therapists can give at this stage. How artists and therapists with experience of working at the end of life can be involved in other areas of care such as supporting older people in care homes and those living with dementia is also discussed. The book also introduces the important area of health promotion, and how there is a growing responsibility to change people's attitudes towards death, dying and bereavement. Clear, practical examples are given as to how this might be achieved. Full of professional advice and career guidance, this book will be an invaluable tool for those working with patients nearing the end of life and those considering working in this area, as well as students in training.
Author: Institute of MedicinePublish On: 1997-10-16
This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family.
Author: Institute of Medicine
Publisher: National Academies Press
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
In general , our experience with both these studies and our work to date with
nursing assistants suggested strongly that they ... care , with an emphasis on the
role of CNAs in providing these most important components of care at the end of life .
Author: Eileen R. Chichin
Publisher: Springer Publishing Company
This book describes a research-based project that was developed to assess Certified Nursing Assistants' (CNAs) knowledge and attitudes about ethical issues and end-of-life decision-making and to provide educational intervention and support. Based on the project's findings, a workbook was designed to enable nursing homes to conduct an ethics education program for their CNAs.
"Nursing Care at the End of Life " Ginny Wacker Guido, JD, MSN, RN, FAAN Using an effective modular, self-study approach, this new book explores the many facets of end-of-life care, including clinical management, palliative care, nutrition, ...
Author: Ginny Wacker Guido
Publisher: Prentice Hall
Nursing Care at the End of Life, by Ginny Wacker Guido, incorporates many of the chapter features in High Acuity Nursing 5th ed.,by Kathleen Dorman Wagner. Using this format, the author presents material ranging from the legal and ethical aspects that affect care to the clinical issues nurses face when dealing with acute illness, pain and dying, to communication and family dynamics. Case studies give readers an opportunity to process and apply the chapter material. The role of the nurse is highlighted throughout the book and each chapter is followed by NCLEX-style review questions. This is a perfect reference for anyone studying to become a nurse or a nurse needed a professional resource for career success.
POLICY STATEMENT Nursing Colleges Point to Needed Skills for END - OF - LIFE CARE FROM UN AGENCIES. U ndergraduate nursing students should not
only be skilled at addressing the physical , psychological , social , and spiritual ...
The series is directed by Stephen McPhee, a leading authoriity of end of life care, and the chief editor of our market leading Current Medical Diagnosis and Treatment text.
Author: Stephen J. McPhee
Publisher: McGraw Hill Professional
The world's leading source of evidence-based guidance on caring for patients at the end of life. Featuirng the content of the world's most widely read medical journal, plus completely new, never-before-published content. Perfect for medical students, trainees, and clinicians alike. Market / Audience Medical students: 18000/yr US, 250,000 global NP and PA students: 25,000/yr US, 50,000+ global IM and FP residents: 30,000 US, 60,000 global IM and FP clinicians: 140,000 US, 300,000+ global Palliative medicine: 3000 US Oncology: 20,000 US, 60,000 global Social workers About the Book In the tradition of the User's Guides to the Medical Literature, and The Rational Clinical Examination, JAMA/Care at the Close of Life is based on a widely successful series of articles appearing over the course of the last ten years in JAMA, the world's most widely read medical journal. The series is directed by Stephen McPhee, a leading authoriity of end of life care, and the chief editor of our market leading Current Medical Diagnosis and Treatment text. The articles in the series cover fundamental topics and challenges in caring for patients who have been given a terminal diagnosis. Featuring a strong focus on evidence-based medicine, and organized by clinical cases, the articles are widely read by faculty, medical students, and clinicians who, frankly, have not been given a solid educational experience on this very important medical issue. The book will be physically modeled after The Rational Clinical Examination, in a full color format that highlights the clinical cases. It will be well suited for use as an required or recommended textbook for medical, PA, and NO students, and as a clinical reference text for trainees and practicing physicians and nurses. Key Selling Features Based on highy regarded content from the world's most widely read medical journal All content is completely updated, and extensive new, never-before-published content has been added Case-based, and evidence-based, so its a perfect fit for the way medical students and residents like to learn Focuses on practical, real-world issues for primary care physicians, and avoids esoteric issues of interest only to specialists in palliative care Full color format, modeled after the highly regarded Rational Clinical Examination Includes multimedia materials available on line: Power Point slides for teaching, and video interviews with patients in end-of-life care, so that faculty and students get supplemental resources for learning the art and science of care at the end of life Evidence-based guidance from the world's leading medical journal, on a critical topic that has been neglected in medical education and training until recently. Author Profile JAMA is the world's most widely read medical journal, and has a reputation for excellence in evidence-based medicine. Stephen McPhee has high visbility on account of his editorship of CMDT, and for his driving role in enhancing end of life care in medical education and training programs. He is: Professor of Medicine, UCSF School of Medicine, San Francisco CA
" Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that end-of-life care is among the biggest national crises facing us today. In addressing the crisis, politics has trumped reason.
Author: Ira Byock
Category: Social Science
A palliative care doctor on the front lines of hospital care illuminates one of the most important and controversial ethical issues of our time on his quest to transform care through the end of life. It is harder to die in this country than ever before. Statistics show that the vast majority of Americans would prefer to die at home, yet many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to "fight disease and illness at all cost." Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that end-of-life care is among the biggest national crises facing us today. In addressing the crisis, politics has trumped reason. Dr. Byock explains that to ensure the best possible care for those we love-and eventually ourselves- we must not only remake our healthcare system, we must also move past our cultural aversion to talking about death and acknowledge the fact of mortality once and for all. Dr. Byock describes what palliative care really is, and-with a doctor's compassion and insight-puts a human face on the issues by telling richly moving, heart-wrenching, and uplifting stories of real people during the most difficult moments in their lives. Byock takes us inside his busy, cutting-edge academic medical center to show what the best care at the end of life can look like and how doctors and nurses can profoundly shape the way families experience loss. Like books by Atul Gawande and Jerome Groopman, The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning, life or death medical drama. It is passionate and timely, and it has the power to lead a new kind of national conversation.