Grandparenting Children with Disabilities

Grandparenting Children with Disabilities

Grandparenting. Children. with. Disabilities. Amber Tatro was born with spina bifida and went on to win a 1984 Supreme Court case. Amber had partial paralysis, impaired speech, and difficulty urinating on her own.1 Her family notified ...

Author: Madonna Harrington Meyer

Publisher: Springer Nature

ISBN: 9783030390556

Category: Social Science

Page: 376

View: 570

Childhood disabilities, particularly cognitive disabilities, are on the rise yet social programs and services to help US families respond to disabilities are not. Many families turn to grandparents for assistance juggling work, family responsibilities, and specialized therapies. This book is based on in-depth interviews with grandparents who are providing at least some care to grandchildren with disabilities. The analyses will help to better understand (1) under what conditions grandparents provide care and support, (2) what types and intensities of care and support grandparents provide, and (3) the impact of that care and support on grandparents’ social, emotional, physical, and financial wellbeing. In this fascinating and provocative book, Madonna Harrington Meyer and Ynesse Abdul-Malak take readers on a deep dive into the complex lives of grandparents who care for their disabled grandchildren. In Grandparenting Children with Disabilities, their interviews reveal the joy, meaning, and purpose grandparents find in caregiving, the challenges and frustrations they encounter, and the many ways they compromise their own health and well-being for the sake of their grandchildren. Drawing from theories of cumulative inequality and from their deep knowledge of the US policy context, the authors lay bare the systemic failures that leave families of children with disabilities without adequate support and that place the most vulnerable among them at grave physical, emotional, and financial risk... Jane McLeod, Provost Professor, Indiana University Grandparents in the U.S. already take on far more parenting responsibilities as compared to their peers in other countries. Grandparenting Children with Disabilities demonstrates that the intensity of these responsibilities is compounded for those whose grandchildren have disabilities given limited policy supports and a society still largely unaccommodating to those with disabilities. This book beautifully navigates the tension between the love these grandparents have for their grandchildren and the challenges they face caring for them. Pamela Herd, Professor, Georgetown University Grandparenting Children with Disabilities offers important insights about the lived experience of older adults who care for and care about their grandchildren...The authors skillfully integrate the stories they tell with consideration of macro social structural influences and life course perspectives... I recommend it highly! Eva Kahana, Distinguished University Professor, Case Western Reserve
Categories: Social Science

Grandparents of Children with Disabilities

Grandparents of Children with Disabilities

The experience of transformation in parents of children with disabilities: Theoretical Considerations. Developmental Disabilities Bulletin, 32, 84–110. Seligman, M. (1991). Grandparents of disabled grandchildren: Hopes, fears, ...

Author: Liora Findler

Publisher: Springer

ISBN: 9783319455174

Category: Psychology

Page: 111

View: 229

This briefs offers a comprehensive view of the journey of grandparents of children with disabilities by employing a wide range of theoretical approaches such as intergenerational relationships, positive psychology, psychoanalytic views and models of stress. It presents a multidimensional view of grandparents, which begins with the general role of grandparents in the family and the transition to grandparenthood, as a major life event. The briefs moves on to discuss grandparents’ roles under unique circumstances such as illness or disability in the family and then deals with perspectives of parents of children with disabilities on the role of grandparents. Finally, it reviews attitudes of professionals toward grandparents and concludes with suggested intervention strategies for working with families on intergenerational relationships.
Categories: Psychology

Grandparents as Carers of Children with Disabilities

Grandparents as Carers of Children with Disabilities

The form that we wish to consider in this paper is grandparenting as mentoring. We are also concerned with the potential of older persons who are not related, to become mentors and develop solidarity with young persons with disabilities ...

Author: Phillip Mccallion

Publisher: Routledge

ISBN: 9781135415389

Category: Social Science

Page: 150

View: 662

Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, ”Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions.” Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
Categories: Social Science

Grandparenting a Child with Special Needs

Grandparenting a Child with Special Needs

Grandparents awaiting the birth of a grandchild usually don't care if it is a boy or girl as long as the baby is healthy. If a child is born with a birth defect or disability, some grandparents are like the Rock of Gibraltar, ...

Author: Charlotte E. Thompson

Publisher: Jessica Kingsley Publishers

ISBN: 9781843109068

Category: Family & Relationships

Page: 256

View: 101

This book provides guidance on how to grandparent a child with special needs and give parents the added support they need. From coming to terms with a diagnosis, to helping with the transition from adolescence to adulthood, the book gives clear advice on grandparenting a child with special needs throughout their life.
Categories: Family & Relationships

Grandparents as Carers of Children with Disabilities

Grandparents as Carers of Children with Disabilities

Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship ...

Author: Phillip Mccallion

Publisher: Routledge

ISBN: 9781135415457

Category: Social Science

Page: 150

View: 623

Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, ”Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions.” Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
Categories: Social Science

Grandparents as Carers of Children with Disabilities

Grandparents as Carers of Children with Disabilities

Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship ...

Author: Philip McCallion

Publisher: Routledge

ISBN: 0789011921

Category: Family & Relationships

Page: 127

View: 762

Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, "Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions." Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
Categories: Family & Relationships

Intergenerational Bonds

Intergenerational Bonds

Technology also opens upon potential avenues for grandparents to interact with their grandchildren with disabilities even from a distance, although this might be beyond the reach of some children with disabilities.

Author: Mary Renck Jalongo

Publisher: Springer Nature

ISBN: 9783030819651

Category: Electronic books

Page: 319

View: 501

This book studies the many different ways in which the lives of the first, third, and fourth generations intersect and the reciprocal benefits that can accrue from establishing positive intergenerational bonds. The unifying feature across the chapters is that the authors view these relationships as a powerful influence on Quality of Life (QoL). The book takes the stance that older adults figure prominently in the QoL of young children, with the latter group defined here as ranging in age from infancy up to and including eight years of age. It examines how bonds with older adults can affect young childrens functioning across developmental domainsphysical, emotional, social, and cognitive. It addresses questions of importance to those who have a commitment to the very young such as: What benefits can young children derive from positive bonds with older adults? How do young children understand the aging process and develop respect for the elderly? How can published research be used to guide both informal and formal interactions between the older generation and the newest one? and, finally, How can various stakeholders such as professionals, families, organizations, and communities collaborate to enrich and enlarge the kind and amount of support that older adults provide to the very young child?
Categories: Electronic books

Conducting Effective Conferences with Parents of Children with Disabilities

Conducting Effective Conferences with Parents of Children with Disabilities

To many parents of young children , it may seem as though the child's illness or disability will do nothing but harm to the ... Grandparents and Other Extended Family Members Much of the literature on families has focused on the nuclear ...

Author: Milton Seligman

Publisher: Guilford Press

ISBN: 1572305371

Category: Education

Page: 303

View: 724

Successful collaboration between teachers and parents can greatly enhance children's educational growth and development. This clearly written book provides teachers with the knowledge and skills needed to conduct effective conferences with parents of children with disabilities. Readers gain a solid understanding of the challenges that families face as a consequence of childhood disability; how family dynamics and roles are affected; and issues that are likely to arise in meetings with school professionals. Reviewing the basic elements of parent-teacher conferencing, Seligman highlights ways to establish rapport with families, develop strong listening and responding skills, and engage parents who may feel anxious, frustrated, or angry. Also addressed are the specific requirements of the legally mandated Individualized Educational Program conference. Enhancing the book's utility are numerous concrete examples and sample parent-teacher dialogues, as well as role-play scenarios and exercises to build conferencing skills. The Appendix describes a range of disability-related referral sources and publications suitable for recommendation to parents.
Categories: Education

Grandparenting a Child with Special Needs

Grandparenting a Child with Special Needs

This book provides guidance on how to grandparent a child with special needs and give every grandchild the love and care they deserve and parents the added support they need.

Author: Charlotte Thompson

Publisher: Jessica Kingsley Publishers

ISBN: 1846429420

Category: Family & Relationships

Page: 256

View: 223

When a new baby is born into a family, grandparents are excited about having a baby to enjoy and love. If the child is born with a disability, it can be difficult to know how to react and how best to help the child and the family as a whole. This book provides guidance on how to grandparent a child with special needs and give every grandchild the love and care they deserve and parents the added support they need. From coming to terms with a diagnosis, to helping with the transition from adolescence to adulthood, the book gives clear advice on grandparenting a child with special needs throughout their life. The author covers the medical, emotional and practical aspects of being a grandparent and explores important issues such as researching resources for specialized care, accessing financial and legal resources and, just as importantly, how to have fun and spend quality time with a grandchild with a disability. The book also addresses how to handle the diagnosis of a serious accident or progressive illness. Grandparenting a Child with Special Needs is a unique guide for grandparents keen to make a difference to the lives of their children and their grandchildren.
Categories: Family & Relationships

Family Consequences of Children s Disabilities

Family Consequences of Children   s Disabilities

In the face of these caregiving challenges, support from extended family can be crucial for parents of children with disabilities. Grandparents, in particular, are often a potential source of support for families with chronic special ...

Author: Denis P. Hogan

Publisher: Russell Sage Foundation

ISBN: 9781610447737

Category: Social Science

Page: 132

View: 586

The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Categories: Social Science